Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots. more

Being the sickest person you know is hard … But here on Chronically the Sickest we embrace that! One every episode we strive to make you feel normal with chats about our favorite coffee orders, diagnoses and our tips & tricks for getting through the day.Come check it out! We'd love to have you. more

The Parkinson's Experience is a podcast hosted by a Person with Parkinson's (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the few podcasts available on this topic, don't skip this one from the viewpoint of a patient. Thank you to my sponsor Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about Parkinson's treatment options, please visit DBSandMe.com more

The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com. more

Welcome to My Spoonie Sisters ! If you're wondering what a 'Spoonie' is, it's a term lovingly embraced by those living with chronic illnesses, based on the Spoon Theory. It's all about managing our limited energy (or 'spoons') while navigating life's challenges. Each week, join us to hear from your 'Spoonie Sisters' host, co-hosts, and our inspiring special guests as we share real-life stories, tips, and encouragement. Whether you're here to learn, connect, or feel less alone, you'll find a supportive space filled with understanding, laughter, and strength. Let's journey through chronic illness together! Tune in and join the sisterhood! All guests featured or mentioned in this podcast will be listed for your convenience. Don't forget to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for updates on new episodes and more. If you have a story to share or want to be featured on My Spoonie Sisters, please email MySpoonieSisters@gmail.com. We eagerly look forward to speaking and hearing from all our Spoonies! Disclaimer: While we are not doctors or healthcare Practitioners, we want to assure you that this podcast is a credible source of information. It's based on our guests' personal experiences and the strategies we've found effective for ourselves. However, everyone's body is unique, and what works for one person may not work for another. If you have any health-related questions, it's always best to consult your Primary Doctor or Rheumatologist. Remember, our goal at My Spoonie Sisters is to connect people and provide them with the support and tools they need to live better lives. more

Chronic illness does not have to control you or define you. In the Chronic Truth podcast, you'll learn how to navigate through uncertain diagnoses, finding your light during the dark times, and having a better outlook on life. I'll share my personal story along with countless others who have been through the deepest depths of their health and overcame obstacles in their diagnosis. Tune in every Friday for new inspiring stories from patients just like you. ~Not without a fight! Together WE are STRONG! email us: chronictruthpodcast@gmail.com www.chronictruthpodcast.com more

This podcast is for those who know someone with an autoimmune disease or chronic illness, and for the warriors newly embarking on this journey. This space is about harnessing our power to fight and triumph over these battles. It's about having a strong will, a resilient mindset, and the support of loved ones. We are committed to empowering, educating, and connecting individuals facing daily challenges due to chronic illnesses. We'll delve into the nuances of living with conditions like lupus and offer practical advice, all while nurturing a supportive community. more

Little Friends of Epilepsy - The Podcast is your go-to space for all things epilepsy! Join us as we dive into the world of purple warriors, exploring how books, journaling, art, and movement can be powerful tools for mental health and well-being. Each episode features inspiring stories, and practical tips designed to support and uplift those living with epilepsy. Whether you're seeking advice, inspiration, or simply a supportive community, Little Friends of Epilepsy has you covered. more

No Silver Bullet is a group started by PwP for PwP, their carers, & PD Professionals, all of the firm belief that there is so much more that a PwP can do than just pop meds! We all get a different version of PD to deal with & as they say, 'There is no one silver bullet to cure all!' So we hope by sharing expert's research with you that something mentioned will help you! Please share this content VERY IMPORTANT MESSAGE:- Please be aware, we are not Doctors, Neurologists or PD Professionals, simply share information from our speakers, many of whom are Professionals; however, all would agree that we are all very different in our needs, symptoms, & stage of PD!YOU MUST CONSULT YOUR PROFESSIONAL PD SUPPORT TEAM BEFORE YOU CHANGE ANY MEDICATIONS. more

A series of interviews and discussions with medical experts concerning complex chronic illness. Available on all popular Podcast channels such as Apple, Spotify, YouTube, Amazon Music, iHeart Radio, and more.'I spent the day driving today and listened to about six hours worth of previous episodes (of Dr. Eleanor Stein's Podcast). So glad I did. Very high-quality content and a great variety of guests 🙂' - Dr. Richard Nahas, MD' more

Hosted by online magazine Parkinson's Life and supported by Parkinson's Europe, this free podcast explores the reality of life with Parkinson's and shares ideas on how to live well with the world's fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons. parkinsonslife.eu Hosted on Acast. See acast.com/privacy for more information. more

The Generation Lyme Podcast shares information and insights through personal stories to help people better understand and manage Lyme disease and other chronic illness experiences. Covering a wide variety of relevant topics, including relationships, treatments, mindset, lifestyle, and more, we raise awareness and show people in our community that they're not alone.Generation Lyme is a community built to empower people facing Lyme disease. We host online Meet-Ups several times a week for patients, parents, partners, and supporters.Find us online at https://genlyme.org. more

Interviews and discussions about life with disability

Testing positivefor those living with {or without} chronic illnesses and/or disabilitieshosted by Dayna Marie (@_____daynamarie)Staying sick and wanna chat with me on the podcast? Email stillpositivepodcast@gmail.com more

Welcome to The Chronically Positive Podcast! This podcast delves into the complexities of living with chronic illness. It's not about forcing positivity or suggesting that a positive mindset is the solution—because we all know it's not that simple. Instead, we focus on resilience, creativity, and finding meaning in our challenges. Each episode features inspiring stories from individuals who have turned their diagnoses into opportunities for growth and advocacy. Whether you're newly diagnosed or have lived with chronic illness for years, this podcast reminds you that your journey matters. more

Juggling Chronic Illness, Kids, a Job and a Dream Are you a busy mum? An entrepreneur? Or, do you have a job? I know you are trying to juggle so many things and then, just to add to the mix, you also have 1, maybe 2 or 3 chronic illnesses...I am all of those things, but don't want to give up on wanting more and getting all the joy I can out of my life.In this podcast, I share the raw realities of living with chronic illness while juggling motherhood, career, and still chasing my dreams. This is a journey of resilience & acceptance.I offer insights, support, and encouragement drawn from my own experiences to help fellow female entrepreneurs find hope and inspiration. I also share the practical strategies I used to help me manage my mental health when times were particularly tough.Whether you're living with chronic illness or supporting someone who is, I offer uplifting stories and a dose of positivity.Join me to have someone that you can listen to for a few minutes, that understands life dealing with chronic illnesses as well as trying to keep up with everything else!There will be a new episode every month, so subscribe to stay updated & join my email list to receive news and the free journaling prompts that helped me with my mental health during tough times. Together we can tackle life with chronic illness with resilience, hope, bravery, and strength.Keep sharing your magic! more

Dysunderstood exists to share stories and and foster community of the dysunderstood- those living with complex, misunderstood, chronic illness. The Dysunderstood podcast provides a platform to patients, providers and the community collectively working towards increased understanding of infection-associated conditions like dysautonomia, Long Covid, ME/CFS, chronic lyme, and more. Guests share their lived experience, knowledge, and hopes for the future of this community. The Dysunderstood Podcast host, Ella Eastin, created the Dysunderstood platform after her own experience with disabling, chronic illness that ended her professional swimming career and drove her to pursue a career in medicine. more