Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots. more

The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com. more

Arthritis life features real patient stories, expert advice, life hacks and more to help you feel more empowered and less alone. Host Cheryl Crow shares her insights from both as a rheumatoid arthritis patient for over twenty years and as an occupational therapist, a health profession that focuses on empowering people with health challenges to function in their daily lives.This podcast also includes reflections on how you can have the best quality of life possible despite chronic pain, anxiety and other challenging parts of chronic illness. My goal is to help you manage REAL life with arthritis, beyond joint pain. Let's get started! more

An award-winning podcast about invisible conditions and chronic invisible illness, featuring interviews with survivors, their loved ones, advocates, and experts in varied healing modalities, from medical to holistic. Hosted by Lauren Freedman, a health coach and patient advocate, who lives with Hashimoto's disease and sleep disorders, Uninvisible uncovers real stories of survival and humanity complete with laughter. In truth and with candor, we offer solutions and challenge the world to change. uninvisiblepod.substack.com more

Painiac, the first podcast about mindfully living with chronic pain, is a free resource for people living with chronic pain or illness. Painiac is for people living with chronic pain and the awesome people who love them. We also explore what it means to live with various types of pain whether it be emotional, mental, or physical, and we share inspiring stories of other painiacs who are learning to live well even when life hurts. With host Shelly Jackson Buffington, listeners learn about topics such as managing expectations, asking for help, working with limitations, talking with your doctor, confidence, and self-care. Painiac features conversations with inspiring people across the globe who live with pain and thrive in spite of it. In each episode, Shelly shares simple and practical tools to help people reframe their relationship with pain and other challenging life experiences. To learn more, visit www.painiacpodcast.com. more

We're two 30-somethings living a food allergy life who never go anywhere without our epis! (Two of them, IYKYK). EpiPod is the resource and community we wish we'd had along the way.Sarah is a mom to two little boys with food allergies. Danielle has navigated life-threatening allergies her whole life. Living with an invisible health condition can feel SO isolating. Join us on the couch and take a load off with people who get it.You're in for a mix of allergy treatment updates, vent seshes, tips, and wins. Plus the occasional guest to learn from the experts themselves! more

Brianne talks to friends and strangers about their experiences managing their health, seeking a diagnosis, and building a life with chronic illness. more

The Chronically Courageous, where chronic illness warriors come to feel empowered and uplifted.  Listen each week to be inspired by others who have found happiness and peace, despite the physical and emotional tolls of chronic illness. Together, we navigate this complex journey and move forward with courage, passion, and purpose! Hosted on Acast. See acast.com/privacy for more information. more

Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD. more

The Parkinson's Experience is a podcast hosted by a Person with Parkinson's (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the few podcasts available on this topic, don't skip this one from the viewpoint of a patient. Thank you to my sponsor Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about Parkinson's treatment options, please visit DBSandMe.com more

Hosted by online magazine Parkinson's Life and supported by Parkinson's Europe, this free podcast explores the reality of life with Parkinson's and shares ideas on how to live well with the world's fastest growing neurological condition. Join us for honest conversation, useful information and inspiring stories from around the world. #ParkinsonsLife #Parkinsons. parkinsonslife.eu Hosted on Acast. See acast.com/privacy for more information. more

Welcome to My Spoonie Sisters ! If you're wondering what a 'Spoonie' is, it's a term lovingly embraced by those living with chronic illnesses, based on the Spoon Theory. It's all about managing our limited energy (or 'spoons') while navigating life's challenges. Each week, join us to hear from your 'Spoonie Sisters' host, co-hosts, and our inspiring special guests as we share real-life stories, tips, and encouragement. Whether you're here to learn, connect, or feel less alone, you'll find a supportive space filled with understanding, laughter, and strength. Let's journey through chronic illness together! Tune in and join the sisterhood! All guests featured or mentioned in this podcast will be listed for your convenience. Don't forget to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for updates on new episodes and more. If you have a story to share or want to be featured on My Spoonie Sisters, please email MySpoonieSisters@gmail.com. We eagerly look forward to speaking and hearing from all our Spoonies! Disclaimer: While we are not doctors or healthcare Practitioners, we want to assure you that this podcast is a credible source of information. It's based on our guests' personal experiences and the strategies we've found effective for ourselves. However, everyone's body is unique, and what works for one person may not work for another. If you have any health-related questions, it's always best to consult your Primary Doctor or Rheumatologist. Remember, our goal at My Spoonie Sisters is to connect people and provide them with the support and tools they need to live better lives. more

DISabled to ENabled podcast is the podcast for people with chronic illnesses. Join British host Jessie Ace as she interviews inspiring people affected by chronic illness who turned their diagnosis into something unexpected. Listen to people such as celebrities/CEOs/athletes/marathon runners as well as real-life stories as they let you into their lives and how they did something awesome despite their chronic illness diagnosis. Learn their tips, tricks, and advice for living your best life with your chronic illness. We discuss hard topics with a side of positivity and humor as we navigate life. more

The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan's, Ankylosing spondylitis, Sjogren's syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with our chronic health conditions, speak with other spoonies about their experiences, discuss coping, advocating, and self-care related to chronic illness, provide helpful and well-vetted resources, and interview professionals who are experts in the field to gain further insight into our conditions and learn about ways to educate family, friends, and doctors, advocate for ourselves, cope with our conditions, and hopefully, thrive! This is a great way to join a like-minded community and to meet people who are in the same boat as you. And, to realize that you are not alone. This is a nonjudgmental space to help each other through our chronic illness journey, to be an actual self again, and to make thriving in life an actual possibility. more

Living with a chronic illness can be an incredibly isolating experience. It can feel as though you're navigating life -- your illness itself, your experience with the medical system, communicating with your job and with loved ones -- completely by yourself.In this podcast, Katie, a coach who works with people living with chronic illness and who lives with a chronic illness herself, talks to people about their illnesses & conditions, their experiences, and their lives. The purpose is to share stories and help us all feel more seen, heard, and connected. Welcome to the community! more

Honest conversations about life, faith, and chronic illness—because you deserve to be seen.

* Discusses how Long COVID affects the daily lives of the millions of people worldwide.* For patients (and their friends/family) with: * Long COVID/Post Acute Sequelae of COVID-19 (PASC) * Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) * Postural Orthostatic Tachycardia Syndrome (POTS) & Dysautonomia * Post-Exertional Malaise (PEM)Listen to episodes here --> www.longcovidrealtalk.comEmail: longcovidrealtalk@gmail.com more

The Generation Lyme Podcast shares information and insights through personal stories to help people better understand and manage Lyme disease and other chronic illness experiences. Covering a wide variety of relevant topics, including relationships, treatments, mindset, lifestyle, and more, we raise awareness and show people in our community that they're not alone.Generation Lyme is a community built to empower people facing Lyme disease. We host online Meet-Ups several times a week for patients, parents, partners, and supporters.Find us online at https://genlyme.org. more

Little Friends of Epilepsy - The Podcast is your go-to space for all things epilepsy! Join us as we dive into the world of purple warriors, exploring how books, journaling, art, and movement can be powerful tools for mental health and well-being. Each episode features inspiring stories, and practical tips designed to support and uplift those living with epilepsy. Whether you're seeking advice, inspiration, or simply a supportive community, Little Friends of Epilepsy has you covered. more

Spoonie Radio is a Chronic Fatigue Syndrome & Fibromyalgia Podcast highlighting effective treatment strategies as well as insight from clinicians, researchers, & advocates. Each show focuses on evidenced-based, practical information to spread hope and understanding about an otherwise invisible illness. This show is brought to you by Dr. Courtney Craig, recovered CFS patient, clinician, and creator of www.drCourtneyCraig.com more

Welcome to our new podcast for the chronic illness community! We are Rachel and Tina, sisters both with multiple chronic issues. We want to create a community where we can learn and share informtaion.Some of our topics will include:Mental Health, Depression and AnxietyBeing the CaregiverTips for Managing Flare DaysInterviewing People With Chronic Issues to Learn About Other DiseasesHealth, Fitness and DietRelationshipsBeing Your Own AdvocateAND MORE! more

If chronic illness has ever made you feel lost, alone, or like your body is working against you, this podcast is for you. The Chronic Truth is a weekly show dedicated to helping chronic illness patients find hope, resilience, and community in the middle of their toughest seasons.Every Friday, Kim Nash opens up about her own health journey and sits down with real patients who have faced the darkest moments of their diagnosis and found their way through.Join us for conversations about navigating uncertain diagnoses, managing life with chronic pain, invisible illness, autoimmune conditions, and so much more.Not without a fight. Together, WE are STRONG. more

Testing positivefor those living with {or without} chronic illnesses and/or disabilitieshosted by Dayna Marie (@_____daynamarie)Staying sick and wanna chat with me on the podcast? Email stillpositivepodcast@gmail.com more

Dysunderstood exists to share stories and and foster community of the dysunderstood- those living with complex, misunderstood, chronic illness. The Dysunderstood podcast provides a platform to patients, providers and the community collectively working towards increased understanding of infection-associated conditions like dysautonomia, Long Covid, ME/CFS, chronic lyme, and more. Guests share their lived experience, knowledge, and hopes for the future of this community. The Dysunderstood Podcast host, Ella Eastin, created the Dysunderstood platform after her own experience with disabling, chronic illness that ended her professional swimming career and drove her to pursue a career in medicine. more

Welcome to The Chronically Positive Podcast! This podcast delves into the complexities of living with chronic illness. It's not about forcing positivity or suggesting that a positive mindset is the solution—because we all know it's not that simple. Instead, we focus on resilience, creativity, and finding meaning in our challenges. Each episode features inspiring stories from individuals who have turned their diagnoses into opportunities for growth and advocacy. Whether you're newly diagnosed or have lived with chronic illness for years, this podcast reminds you that your journey matters. more

Interviews and discussions about life with disability

Living with ME/CFS and Long Covid and other Chronic Illness or Disability.  Follow me while I explore the challenges, the suffering, the darkness and the light while living with a chronic illness or disability.  Along the way I will share insights into how I survive, how I struggle, and how I STAY ALIVE.  ❤️  more

This podcast is for those who know someone with an autoimmune disease or chronic illness, and for the warriors newly embarking on this journey. This space is about harnessing our power to fight and triumph over these battles. It's about having a strong will, a resilient mindset, and the support of loved ones. We are committed to empowering, educating, and connecting individuals facing daily challenges due to chronic illnesses. We'll delve into the nuances of living with conditions like lupus and offer practical advice, all while nurturing a supportive community. more