Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

Aging and cystic fibrosis are words you don't always hear in the same sentence — but on this podcast hosted by Dr. Ahmet Uluer and Lauren Harvey, you'll hear them all the time. Thanks to medical advances, many people with CF are living longer, and we thought it was time to get into some real conversations about what living longer with CF means—the good and the not so good. We'll bring in expert guests and people from all walks of CF to talk about different aspects of the challenge — with a little authenticity and laughter on the side. more

We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.Throughout each episode you will hear from members of the CF community, researchers, and clinicians. This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more.On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF. more

Visibiliser l'Invisible au travers de témoignages uniques et singuliers c'est la vocation première du podcast Les invisibles ! Maladies invisibles, maux et expériences invisibilisés... Pour des raisons individuelles, les corps, les esprits et les sociétés invisibilisent des expériences vécues. Dans ce podcast, crée par Tamara Pellegrini, la tengeante s'inverse. La parole est donnée aux personnes qui vivent avec ce qui ne se voit pas.  Diffuser ces espaces de paroles c'est :sensibiliser aux vécus invisibilisés permettre de se reconnaitre et s'identifier aux histoires des autrescréer des groupes d'échanges et de soutiensensibiliser l'entourage (familial, amical, médical)offrir des outils pour une meilleure qualité de vie Tamara Pellegrini, créatrice de ce podcast, vit avec une maladie neurologique invisible. Elle est l'auteure du livre 'Ma maman vit avec une maladie invisible, mais moi je la vois !' qui aborde la maladie d'un parent avec simplicité et poésie aux enfants dès 3 ans. Retrouvez nous sur Instagram : @les_invisibles_podcast pour recevoir toutes les info en avant première et échanger avec la communauté ! Bonne écoute ! Hébergé par Ausha. Visitez ausha.co/fr/politique-de-confidentialite pour plus d'informations. more

Welcome to the  Deep Breaths: Updates from CHEST series, dedicated to championing the prevention, diagnosis, and treatment of lung and chest diseases. Check out CHEST leaders and advocates sharing the latest in chest medicine education, clinical research, and team-based care in the areas of pulmonary diseases, critical care, and sleep medicine. Learn more about the latest diagnostic and treatment advances in pulmonology and critical care below. more

Johnny Packer and Brandon Walley explore what life is like to live with Cystic Fibrosis. A Mississippi State Sports adjacent podcast where some conversations revolve around Bulldog sports and others around life in the South. more

CForYourself is a podcast brought to you by UK charity, Cystic Fibrosis Trust. In each episode of CForYourself, host Lucy Baxter will be having a (virtual) cup of tea and a chat with others in the cystic fibrosis community about a whole range of topics, from exercise and employment to parenting and mental health. We'll also hear from CF experts, who will be sharing their knowledge and advice for everyone affected by CF. CForYourself is all about sharing honest insights into life with cystic fibrosis: the good, the bad and everything in between. For more information about the podcast, and the work of the Trust, please visit https://www.cysticfibrosis.org.uk/podcast more

CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.

Join Dan Beever, Research Fellow at the University of Nottingham, as he navigates the way through his PhD exploring MRI scanning of the lungs in cystic fibrosis, as someone living with the condition.Along the way, Dan will be speaking to others with their own lived experience stories and together, they will explore what it's like to work on something that you have such a close personal connection with.Do you have a lived experience journey to share? Get in touch at danbeever.co.uk. more

Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic. Hosted on Acast. See acast.com/privacy for more information. more

Everyone's experience with cystic fibrosis (CF) is unique. Listen along as different individuals in the community share their diverse perspectives on how CF impacts day-to-day life, and get useful information to help empower you in your own journey. more

This is the Fight2Breathe podcast, hosted by Caleigh Haber, a cystic fibrosis survivor and two-time double lung transplant recipient. The podcast aspires to be the go-to platform for the CF community, featuring powerful personal stories, expert insights, and the latest advancements in CF care. Each episode engages individuals living with CF, their families, caregivers, and medical professionals, fostering understanding, celebrating victories, and tackling challenges. Tune in to inspire, educate, and support the fight against CF. Let's breathe together.To learn more, head to www.fight2breathe.org more

By Brayden and Tyler

This is a 6 episode collection of personal interviews with someone who has Cystic Fibrosis and had a lung transplant. The intended audience is broad and may include someone who has CF, is a parent of a child with CF, is a child of someone with CF, has had or may need a transplant or anyone who would love to be inspired by a story of optimism! more